It's starting to remind me of the book 'The Circle" by Dave Eggers[1]. Where a company ("The Cirlce") eventually, essentially, takes over the control of all information in the world.
It wasn't my favorite book, although I very much respected my Mom for getting it for me. It's an easy read. And it makes you realize what could potentially happen I suppose. It's like 1984 written in 2010. And the ending...well I won't spoil it. Probably worth the read for the reminder. And it is very engaging. A lot of my complaints are almost metaphysical in nature. In that it is very hard to describe definitively what my issue was.
Well, at least in the US there are laws about health information storage, as well as compliance standards and companies who are VERY good at making sure you are in compliance.
Obviously there are failures of the system, but nobody in the field thinks of it as anything less than very serious business.