Wow. Congratulations on getting through that, all of you. That must have been harrowing. One of my children was born with a slight problem: he stopped breathing every couple of minutes and then turned blue and was quite far on the way out before we caught it the first time. Apparently there is some kind of O2 sensing mechanism that is supposed to be activated during delivery or immediately after causing the breathing reflex and it wasn't. It took 12 days to normalize, with lots of excursions, oxygen alarms and one very close call. All that time he spent in a neonatal ICU unit and I'm not exaggerating that it was the longest two weeks of my life. He's 12 now and like yours you'd never know.
What you and yours have gone through makes all that pale in comparison, I can't even begin to imagine what it must have been like. And then to see him now as a four year old perfectly normal kid, that must be really special.
Our daughter was born a month premature, but was absolutely normal. Yet the hospital insisted on nicu for the first night. That was already too harrowing for us first time parents. Can't imagine what you guys went through (Jacques, Noe) and very glad in the end everything worked out. Being used to posts/replies from Jacques (and others) on tech subjects I forget that everyone here is still human with human problems. Thank you for sharing and injecting a dose of humanity and empathy in me.
The things I have seen in that nicu will stay with me for the rest of my life, and I'm not talking about what happened to us and our son but to the other people there. It didn't take all that long to figure out that we were the lucky ones.
What you and yours have gone through makes all that pale in comparison, I can't even begin to imagine what it must have been like. And then to see him now as a four year old perfectly normal kid, that must be really special.