I have lesions in my brain. It is probably toxic leukoencephalopathy, but no one knows. Some neurologists say it is MS, but we do not know anything for sure. People probably does not or would not believe me, but opiates are the only thing that help with a lot of my symptoms. I do not get messed up on them like others. I get no euphoria. It works for me just like alprazolam (Xanax) does. The problem with benzodiazepines (e.g. alprazolam) is that I get a quick tolerance build-up, and I become tolerant after just 2 weeks, and when it works, it does not work as well as opiates do. Opiates have been keeping me productive and focusing on my future, otherwise I live in the past, I am stuck in the past, and I am an emotional wreck.
I had a couple of appointments with my neurologist. She saw me with and without opiates. The first time she saw me while I was being on opiates, she told me how much better I look and all that. If I told her that the difference between the two was opiates, I bet she would approve of its use in my case.
In any case, this is what works for me, and I have been through a lot of psychiatric medications without any success. Opiates are not really an issue at all. I get regular blood tests done, I get MRIs done and so forth... everything seems to be fine, otherwise I would not use it. Constipation is the only issue, but I take magnesium citrate for that.
I would like to add that I wish I did not have to depend on opiates or anything at all, I would rather prefer that, but this is what it is. I am happy I found something that works for me after so many unsuccessful attempts. I found it by accident, even.
Lumbar puncture is postponed due to COVID-19. I was finally going to have it, but they had to lock down the neurology department. That said, I had head MRI twice, 4 years apart. The last one showed no difference to the previous one. I had one just a couple of days ago along with a spinal cord one, I will know more in just about a week. If there are no changes, then it is most likely not MS, I would say. They did this one according to MS MRI protocol; we will see.
Thank you and no problem! Sadly I have been going from neurologist to neurologist, but it does not seem like it is recoverable. There is no way to reverse demyelination[1]. There are some herbs that may help with that, but I am skeptical. If anyone knows something with regarding to this, their input would be welcomed! I know there is a lot of ongoing research on this.
For now I take propolis, vitamin D, B vitamins (B1, B6, B12 especially), garlic oil, quercetin, and bromelain. I just ordered CBD oil and this will be my first time testing it. I hope it is going to work for my muscle spasticity. Additionally I ordered Ceylon cinnamon, because I read some studies with promising results. I might as well give it a try. Opiates do help tremendously, but they do not treat all of my other symptoms.
[1] First search results: "There's no cure for demyelinating conditions, but new myelin growth can occur in areas of damage".
I had a couple of appointments with my neurologist. She saw me with and without opiates. The first time she saw me while I was being on opiates, she told me how much better I look and all that. If I told her that the difference between the two was opiates, I bet she would approve of its use in my case.
In any case, this is what works for me, and I have been through a lot of psychiatric medications without any success. Opiates are not really an issue at all. I get regular blood tests done, I get MRIs done and so forth... everything seems to be fine, otherwise I would not use it. Constipation is the only issue, but I take magnesium citrate for that.
I would like to add that I wish I did not have to depend on opiates or anything at all, I would rather prefer that, but this is what it is. I am happy I found something that works for me after so many unsuccessful attempts. I found it by accident, even.