> A Google account is needed to access the Baseline Platform. The information you provide will be stored in a secure, encrypted database. Verily personnel who need to contact you, such as staff to schedule your testing, will have access to direct identification information (your name, street address, phone number, and email).
> The information you provide may also be shared with the health care professionals who collect your specimen, the clinical laboratory that processes your specimen, the California Department of Public Health, and potentially other federal, state, and local health authorities, and other entities that assist with the testing program. Information may also be shared with certain service providers engaged to perform services on behalf of Verily, including Google, which Verily leverages for certain technology and services, including cloud services, security services, data storage, website hosting, and other support functions.
This is infuriating, I am visibly shaking. Why can't Google act out of the interest of user privacy and stop collecting data in these dire times for once? Charge me $5, but stop collecting data about me.
Imagine you worked at Google. Imagine you were tasked with building this website as quickly as possible.
You have available internal tools designed to work with Google accounts. These tools have already been tested and validated. They have already gone through some level of security and privacy review. They have already scaled to high QPS production uses.
Security is part of the launch review. An ad-hoc user system would require significantly more effort to properly review and get approval. I doubt the website would have finished the PRR if it's not using the existing user system.
Disclaimer: engineer working for Google but not in Verily.
Based on the kind of things the Ad-tech industry does [1], without proper laws protecting users, I have absolutely zero...zilch trust in any advertisement company - I am not partial to Google, rope in Microsoft, Viacom, Amazon, Adobe, Oracle, all of them [2] (these are the top ad aggregators and auctioning houses).
The last company I am willing to give my health information is an advertisment company. Nothing to worry, the fox is doing a great job at keeping the hens safe.
> My child is under 18 but I’m concerned they need to be tested. Can I fill out the screener questions for them?
Unfortunately no. At this time, only those who are 18 years or older are eligible through this program and anyone who is prioritized for testing will need to provide a valid ID to confirm identity at the testing site. Please consult with your physician if you have concerns about your family’s health.
In Canada, the communication I've been seeing is basically that they are only interested in testing you if you might need treatment. Since people under 18 are at such low medical risk from this virus, they're probably very low priority to test. Combine that with the fact that laws probably exist that make it inconvenient to provide this service for them, and it likely makes sense to just blanket exclude them from the program.
There is absolutely treatment for the disease. It's just that the treatment is largely restricted to ameliorating the symptoms while the root cause, the virus proliferation, is left to the immune system. (The possible exception are antivirals currently being tested.) Symptom treatment includes things like concentrated oxygen and mechanical ventilation.
There are trying to measure how fast it is spreading in different areas so they can take appropriate counter measures to avoid overwhelming the health care system in those areas. i.e. "flattening the curve"
I looked for "HIPAA" and didn't find it anywhere. Nor the ability to request that data be deleted. I wish they would take privacy for this more seriously than Google's baseline level of privacy.
>We are committed to maintaining high privacy standards and keeping your data safe. Project Baseline follows federal and state regulations governing the collection and use of an individual's data, including the Health Insurance Portability and Accountability Act (HIPAA). Data is stored in advanced systems with best-in-class security and privacy protocols.
That's the general project baseline FAQ, the COVID-19 project FAQ has a similar question which does not address HIPAA: “We are committed to maintaining high privacy standards and keeping your data safe. Project Baseline follows federal and state regulations governing the collection and use of an individual's data. Data is stored in advanced systems with security and privacy protocols.”
Note that this text only appears under "How will you protect my privacy" _under the FAQ page_. If you look at the question with the same title on the landing page, HIPAA is not mentioned
That's because one is about Project Baseline in general (the one that mentions HIPAA) and one is about the special COVID-19 project (the one that does not.) They are different FAQs about different efforts.
For some reason, the text under https://www.projectbaseline.com/faq/ is different than that on the COVID-19 page. The FAQ page does explicitly mention HIPAA compliance
Because despite using the Project Baseline webpage, the Verily COVID-19 effort is distinct from Project Baseline and operates under different processes, probably.
I was curious what this site did, but it just says "Unfortunately, we are unable to schedule more appointments at this time." at the end of the survey.
Interesting how it goes from `projectbaseline.com` to `baseline.google.com` after you complete the initial questionnaire, but the site continues to look the same. Why not just have one consistent domain then? Obviously it doesn't matter as long as it works, and it was built extremely quickly, though it does make me wonder.
Across the top, looking for the gist, and you can "Get Involved", see "Our Team", peruse "FAQ", and delve into the "Blog".
Next, decide "If you are interested in getting tested for COVID-19, complete an online screener".
What's the audience? Some might have confusion about terms like Teams, FAQs, Blogs, and Online screeners.
From the FAQ: "Together with researchers, clinicians, engineers, designers, advocates, and volunteers like you, we're collaborating to design the next generation of healthcare tools and services."
The following text is the contents of the Authorization Form that I signed with I signed up. It was presented to me in a web page, and once I agreed, a PDF of it was made available to me via a Drive link. Although the file is not in my Google Drive, I do not know if the link/document is unique to me, so instead of providing the link, I have copied the text. I did my best effort to reproduce the formatting: Wherever you see italicized text, that appears bold in the Authorization Form.
COVID-19 PUBLIC HEALTH PROGRAM AUTHORIZATION FORM
Background
Public health and healthcare professionals are responding to an outbreak of respiratory disease caused by a novel (new) coronavirus that was first detected in China and which has now been detected in more than 100 locations internationally, including in the United States. The virus has been named “SARS-CoV-2” and the disease it causes has been named “coronavirus disease 2019” (abbreviated “COVID-19”).
Current diagnosis efforts of COVID-19 are primarily focused on symptomatic and/or high risk individuals.
Verily, the Alphabet company focused on life sciences and healthcare, has offered to support public health efforts by providing its data collection infrastructure to help individuals understand their risk profile for COVID-19, help facilitate testing if indicated, and provide test results back to tested individuals in an efficient manner.
What will I need to do?
1) Complete a short survey.
This will include questions about yourself, including age, gender, home address, contact information, recent travel history, current health status, and any known contact with others who may have been exposed to SARS-CoV-2.
2) For those deemed eligible for free testing with this program, schedule an appointment to go to a local facility to provide a test specimen.
Based on your survey results, if you are identified as eligible for testing under this program for COVID-19 disease, you will be asked to provide a biospecimen using a nasopharyngeal (NP) swab.
• You will be asked to schedule an appointment at a local facility. You may be contacted directly to schedule this appointment or this may be facilitated through an app or web portal.
3) Go to the test facility at your assigned time for the test swab.
At the test facility, you will need to bring a form of identification to confirm your identity prior to performing the swab collection.
A trained healthcare professional will perform the swab collection.
• This will be done by having you tilt your head back while a trained healthcare member inserts a sterile cotton swab into your nostril towards the back of your nose. The swab will be inserted to a depth about the distance from your outer nose to the outer opening of the ear. Once inserted, it will be held in place for a few seconds then slowly removed with mild rotation. This may cause temporary discomfort.
• Your sample will be coded and associated with the data you provided in your survey.
Your sample will be tested by a clinical laboratory to determine if your sample is either positive or negative for SARS-CoV2.
4) Follow recommended guidelines based on results of your lab testing.
The lab results will be provided directly to you via email, text, phone call or through an app or web portal. The testing may take a few days and results will be returned to you when available.
In addition, results of your test will be provided to public health authorities, including the California Department of Public Health and potentially other federal, state, and local health authorities.
How will my data be protected?
Privacy is a top priority.
• Your data will be kept in a secure, encrypted database with restricted, monitored access
• This database complies with applicable state and federal laws that protect the privacy and security of your health information
Who will access my data and in what form?
Verily will have access to information that directly identifies you, including your name, street address, email address, and phone number. This information may also be provided to Verily’s contractors, the healthcare professionals who collect your specimen, the clinical laboratory that processes your specimen, he California Department of Public Health and potentially other federal, state, and local health authorities, and other entities that assist with the testing program. The information collected will be sed to perform the test, administer and improve the testing program, and for public health purposes.
In addition, your survey responses and test results will be provided to Verily, and may be further shared with the clinical laboratory performing the testing (for example, Quest Diagnostics), and public health authorities, including the California Department of Public Health. Public health officials may use this information to inform public health actions to help protect our community. Verily will not use your data for research purposes without your permission. In the future, you may be invited to share data collected during this process for research purposes.
Verily leverages certain technology and services from Google, including cloud services, security services, data storage, website hosting, and other support functions. Google’s access to data is strictly limited to the purpose of providing such services. Your data collected by Verily through the services described in this permission form will never be joined with your data stored in Google products without your explicit permission.
Does it cost me anything?
This survey and lab test will be provided at no cost to you.
How does something like this really help? It seems like an automated phone answering system for COVID testing. This seems like, maybe, 0.1% of the problem we have in this country with dealing with this virus. I'm not saying it's unhelpful, just that it doesn't seem all that helpful either. It seems like a bunch of hot air from Trump and Google.
Also, isn't verily a bioscience company? I would expect them to be working on testing, or treatments, or almost anything other than a website. This drastically lowers my opinion of what I thought verily was, which admittedly, I didn't know much, I just figured it would being doing something a little more "hands on" here. Hopefully they're doing that too...
Also:
> Your data collected by Verily through the testing program will never be joined with your data stored in Google products without your explicit permission.
Who outside of even a subset of software engineers know what this means?
Better data improves the probability of "flattening the curve" to avoid overwhelming the health care system. Many lives can be saved if this can be achieved. In Italy they failed to do this, ran out of ventilators, and people are dying who would not otherwise be dying.
For another example, google "flattening the curve st louis vs philadelphia 1919 swine flu".
There are two projects related to Google going on - one is this one, from Verily, another is broader information website, led by Google. From TC[1]:
Google later clarified is that there are at least two different efforts here. Google’s work around bringing more information about COVID-19 to its users across its various services — and Verily’s efforts to launch a pilot website “that will enable individuals to do a risk assessment and be scheduled for testing at sites in the Bay Area.”
I can not say which one Trump meant - and am not sure if he really goes into the details beyond "we're working with Google folks on making information available" - the President usually doesn't do such things by himself, he delegates - but I would assume he probably meant the other one. But maybe both. Or maybe just Verily effort and extending it to broader reach. We'll see.
Ease of deployment in employees knowing the area, existing relationships with people in the community, less likely to make mistakes. Pretty obvious why, really.
> The information you provide may also be shared with the health care professionals who collect your specimen, the clinical laboratory that processes your specimen, the California Department of Public Health, and potentially other federal, state, and local health authorities, and other entities that assist with the testing program. Information may also be shared with certain service providers engaged to perform services on behalf of Verily, including Google, which Verily leverages for certain technology and services, including cloud services, security services, data storage, website hosting, and other support functions.