I agree it will change - actually if this becomes medically responsible nothing needs to change. we just need to stop experimenting on humans. once the science is sound it becomes healing humans with gene therapy

Drug testing is always experimentation on humans. Drugs have to have human trials for safety before we are certain they are safe. Testing on animals reduces the risk but does not eliminate it.

And if the treatment is only effective on infants or children then there's no way to get informed consent. Your options are to experiment the best you can and accept the risk or forgo the opportunity (or more likely let China do it and accept both the risks and the rewards, as they seem willing to do).