The particular fix done in this study prevents hypertrophic cardiomyopathy, a genetic disorder that I have.
I cannot explain how weird it feels to read front page headlines that scientists have "fixed" me, that its a huge breakthrough that scientists will be able to remove part of what makes me ME from future generations.
I'm all for it, of course. HCM, most frequently diagnosed in people by their sudden death, is bad. But at a personal level, this feels unnerving.
I can't claim to represent the last two, but I would gladly trade a great deal less tolerance of autistic people for no one to ever be born with autism ever again, even if I didn't personally benefit at all.
I cannot explain how weird it feels to read front page headlines that scientists have "fixed" me, that its a huge breakthrough that scientists will be able to remove part of what makes me ME from future generations.
I'm all for it, of course. HCM, most frequently diagnosed in people by their sudden death, is bad. But at a personal level, this feels unnerving.