In that research context, it can take teams of 10's to 100's years to establish a usable dataset which can win grant money to both serve patient populations and reinforce the long-term sustainability of a clinical/academic institution.
You bet your ass that data isn't going to be given out. It's not about covering your ass. It's about stewardship of data which has been culled via consent from participants, often of a very sensitive nature, with specific and explicit limits to how it will be used, managed, and shared.
It's a gold mine that was built from years of getting at the forefront of a niche and then racing year after year to stay there.
The gold from the mine isn't used just to line someone's pockets or add lines to a CV. That gold often is used to provide in the treatment of people who would otherwise be left to the whims of state legislatures that play political football with Medicaid and funding for health services for underserved populations.
Also, from my experience, investigators sitting on good datasets often WANT to share them for use since it establishes increased value and bodes well for future grant competitiveness. Here again... bring your credentials since you are being privy to something bordering on sacred. When I see a term like "research parasites," I know who they are talking about, and no, they are not going to be accepted as a collaborator. It might be a lack of any facet necessary to carry that data stewardship at or beyond what the originator has done - and that is not something you easily demonstrate outside of the existing systems.
In that research context, it can take teams of 10's to 100's years to establish a usable dataset which can win grant money to both serve patient populations and reinforce the long-term sustainability of a clinical/academic institution.
You bet your ass that data isn't going to be given out. It's not about covering your ass. It's about stewardship of data which has been culled via consent from participants, often of a very sensitive nature, with specific and explicit limits to how it will be used, managed, and shared.
It's a gold mine that was built from years of getting at the forefront of a niche and then racing year after year to stay there.
The gold from the mine isn't used just to line someone's pockets or add lines to a CV. That gold often is used to provide in the treatment of people who would otherwise be left to the whims of state legislatures that play political football with Medicaid and funding for health services for underserved populations.
Also, from my experience, investigators sitting on good datasets often WANT to share them for use since it establishes increased value and bodes well for future grant competitiveness. Here again... bring your credentials since you are being privy to something bordering on sacred. When I see a term like "research parasites," I know who they are talking about, and no, they are not going to be accepted as a collaborator. It might be a lack of any facet necessary to carry that data stewardship at or beyond what the originator has done - and that is not something you easily demonstrate outside of the existing systems.