If you know people at Microsoft Research, they have computational biology groups based out of Cambridge, UK and New England (Cambridge, MA) in association with Harvard and a number of hospitals there.
The research topics they are (or were) looking into is actually Glioblastoma. Apparently as a cancer, it has an extremely complex protein, rna, dna pathway that is bidirectional, making it one of the most complicated and dirty big data sets out there. There are also a signfigant number of problems with Glioblastomas related to computer vision, dosing, ect. Either way, Microsoft research Cambridge/new england does a lot of research on Glioblastoma.
If you have contacts there, this would be a good place to go hunting for help.
Other things:
get help for you. This is stressful for you too. You may be healthy, but you do have worries, thoughts, and feelings about the future right now, and they deserve to be heard out and understood to the fullest for your own health. Do something about it in advance. It isn't selfish - if you are involved in the care of this relative, you need to be able to care about the highest quality you can, which means making sure you are taking care of yourself.
Call the big research hosptials for this type of cancer, and find out the name of patient advocate groups, and people who are allied. These groups usually have conferences, chat boards, email lists, ect. They host them where ever (facebook, websites designed for patients to come together, private websites they built themselves, google groups, what have you, don't expect awesome). They often pass around papers, studies, ect, among themselves. They talk about life issues. They'll be able to share some of the stresses you're going through in ways other people might not.
The research topics they are (or were) looking into is actually Glioblastoma. Apparently as a cancer, it has an extremely complex protein, rna, dna pathway that is bidirectional, making it one of the most complicated and dirty big data sets out there. There are also a signfigant number of problems with Glioblastomas related to computer vision, dosing, ect. Either way, Microsoft research Cambridge/new england does a lot of research on Glioblastoma.
So for example: this paper on stiener trees for big data research was used to find new protein markers for glioblastoma - http://research.microsoft.com/en-us/um/people/borgs/Papers/P...
Those protein markers may/may not be in early stage development for drugs - it is worth asking around about this.
Here is another about imaging in the brain:
http://research.microsoft.com/apps/pubs/default.aspx?id=1643...
If you have contacts there, this would be a good place to go hunting for help.
Other things:
get help for you. This is stressful for you too. You may be healthy, but you do have worries, thoughts, and feelings about the future right now, and they deserve to be heard out and understood to the fullest for your own health. Do something about it in advance. It isn't selfish - if you are involved in the care of this relative, you need to be able to care about the highest quality you can, which means making sure you are taking care of yourself.
Call the big research hosptials for this type of cancer, and find out the name of patient advocate groups, and people who are allied. These groups usually have conferences, chat boards, email lists, ect. They host them where ever (facebook, websites designed for patients to come together, private websites they built themselves, google groups, what have you, don't expect awesome). They often pass around papers, studies, ect, among themselves. They talk about life issues. They'll be able to share some of the stresses you're going through in ways other people might not.