So fwiw I take Solaris every two weeks to treat Myasthenia Gravis and it probably saved my life. It’s an auto immune disease that causes voluntary muscles to quickly tire, and you would be surprised what actually qualifies at voluntary, eg your diaphragm…. So yea, these drugs may be unaffordable and that needs to change , but they do save lives.
I’m glad that drug is helping you.
I’m curious, do you know if it is available in other countries? If yes, then we are basically just subsidizing other places which can buy it, most likely, for much cheaper.
I am a Google apps reseller and have a few customers. My customers get the accounts for a small discount then what they would direct and I make a small margin. Right now the total on that is about 1200 a year. I pretty much use that as a "toy slush fund" and use it to buy geeky stuff without getting in trouble from the boss ( wife ).